I just realized that I haven't finished telling you about my recovery after transplant. So, just shut up and let me finish. Getting tired of all the fan mail of "Come on, Randy, please finish". A man can only take so much.
Let's see, if I remember right, I had just been forced to be stuck in the hospital a little while longer because my body wasn't taking too well to the first Oral Anti-rejection drug. That day I had extremely low levels in my system. Truthfully, it scared me but not too bad. What made the entire thing worse was my Mom took my doctor outside my room and down the hall. They were talking about my levels and then she started crying. That's what really caused me to panic and freak out. When I saw that, my mind starting thinking shit like "The levels are so low that we're probably lucky we haven't had symptoms of rejection yet. I bet it'll happen any minute now" and other similar shit.
In actuality though, I was perfectly fine. Because my body was jumping from extremely high to extremely low they couldn't accurately check but my new Lungs were fine. I wasn't in any danger of rejection. I had learned that after I freaked out on my Mom about how scared I was too die, told her to leave and not come back. The Doctor came in later that night and then calmed me down.
Anyways, so because of that crap I had to stay a little while longer. While yes, I did beat Carl in recovery time. I was screwed because my stupid digestive system has never taken to anything normally. I can drink 3 2 Litre Slurpees a day and not fear Diabetes, it's why I can drink endless amounts of Alcohol and not get drunk, it's why I can eat 2000 dollars a month in food and maybe not lose weight. Man, CF is such a fucked up Disease.
So, they move me to my normal Ward. "H6" as it's called here. It's the Respiratory Ward and Tuberculous Ward. A fucking moronic combination to have on the same floor. I had to get a special sterile room and I could barely leave it because of all the germs on this ward. I couldn't hang around the Nurses Desk and chat em up. Anytime I left my room I had to have a Mask on and I couldn't hover around the Ward. It got so boring.. I enjoyed hanging out with some of the Nurses. They were some really cool people.
It wasn't too eventful while on H6. Basic stuff really, work out, talk with doctors, eat, sleep, ect. The only incidents that I can really remember were of one bitch ass Nurse. I don't remember her name but it wasn't one of the ones I liked.
Now, I am not used to taking my Oral Meds at this point. The most I've ever had to do or keep track of were my Enzymes and those were with meals. Another thing is that my body was still healing at this point and sleep was interesting. Also, since I haven't been home yet, I don't actually have my own supply of Anti-rejection meds. Everything I take has to be prepared by the Nurses and brought to me. Some nights I could sleep for 4 hours, some nights I'd sleep for 12+. I could never really tell. So, because of that, I had to get the Nurses to wake me up so I could take my handful of meds every morning. Nothing easier than walking into someones room, telling them to wake up and handing them pills. Sounds easy, right?
Well, this one Nurse didn't seem to think so. Instead of waking me up or even letting me sleep in a little longer and leave my pills on my wheelie table thingy. She just didn't bother to prepare them period. She decided to go on a rather long ass break and not even inform the other Nurses who would have to watch over her patients while she was gone that I BADLY need to take these pills.
I woke up at about 1pm. I need to take my pills at 9am. Now, within seconds of waking up, I'm panicking, I don't see my meds anywhere in my room. I go out to the Nurses desk and ask for my Nurse. They tell me she went for Lunch and won't be back for some time. The other Nurses look around and she didn't even leave anything prepared. The Nurse didn't come back till 2pm. The entire time, my mind is going "We're gonna reject, we're gonna reject". Making me panic even more. It's so insanely important to take your meds on time at the start.
When she comes back, I say to her "Why didn't you wake me up or even prepare my meds". She actually says to me. "Not my problem" and walks away, prepares my meds, hands them to another Nurse, and then fucks off somewhere. I was just stunned. Don't worry, I filed a complaint against her.
Before I go on, I'mma explain something real quick. I was still fresh out of Transplant. I had good clean lungs, I had my chest ripped open and sewn back together, and all that other fun stuff that you guys remember.
K, So, we're still in the same day as the super late meds. Same Nurse, and all. It's like 4pm or something. Still day out. The Nurse comes up to me, hands me a little bottle and says that my Doctors want a Phlegm sample. Small problem with that. My new lungs don't have any Phlegm as they're relatively new. Also, trying to cough to get up lack of said phlegm was unbelievably painful. After my first and only attempt at getting up Phlegm I inform my Nurse that there is nothing down there to get up. She looks at me like I just said one of the dumbest things she's ever heard in her life. She says back to me "It's not my problem, keep trying."
I, of course, didn't keep trying. I went to the Head Nurse person of the floor and filed another complaint.
It's tomorrow and I thought to myself, "why not try again?". Prove to that bitch Nurse I'm not making shit up. I prepared myself first by taking some extra pain meds and began to try and cough. I wish I could explain how damn near impossible it was to cough. Partly because of pain, partly because....how do I explain this. It's like my body forgot to cough, if that makes any sense. Certain muscles weren't working like they should and so I couldn't get up much. After some extremely painful half coughing, I managed to get up like 1/4th a TeaSpoon of what was most likely just saliva.
I gave the Bottle to the bitch Nurse and said "Happy?", turned around, and walked back into my room. I haven't spoken to that Nurse since or have I seen her since. Don't know what happened to her, don't care.
I really can't remember anything eventful after that. I got discharged on Dec 23rd and was home for a Christmas where I got to be even more disgusted with my younger Brother but that'll be for another time.
